Friday, December 28, 2012

Concert Night

 So we all got dressed up and headed to the church for the annual Christmas concert.
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 Brothers having fun in front of the tree.

 Emma actually stayed awake for the whole concert and sat really good on Grandma's lap. Isaac, on the other hand, was a bit more work.
 Sam, hiding from his Mama who loves taking pictures.
Andrew looking pretty serious and pretty tired. It was a great concert but our boys are always so sleepy. They are used to going to bed at 7:30 and that's when the concert starts. They were also up at 6am that day to play hockey. I think Andrew yawned as much as he sang.

Monday, December 17, 2012

Christmas Prep










Having lots of weekend fun these days getting ready for Christmas. Only 4 days of school left till teh holidays and we are so looking forward to a break. 

Family Time @Birds of Prey




Our family has been spending lots of time down the street, at Birds of Prey lately. Well, mostly Ken and the three oldest while Mom walks over with Isaac and Emma to see how things are going. The boys love exploring the islands as much as they enjoy the skating part. It is so awesome to have this close by and we can't wait to spend more time there over Christmas!

Monday, December 3, 2012

Not easily forgotten

  • June 11 - 1st speech assessment
  • June 14 - Doctor's appointment to request a referral to see a pediatrician
  • June 20 - Speech appointment
  • June 25 - Assessment with a infant preschool educator on Isaac's behavior
  • July 13 - Physio therapist assessment
  • July 18 - doctor appointment - ear infection
  • July 30 - hearing test with an audiologist
  • Aug 30 - pediatrician
  • Sept 26 - speech therapy with a new speech pathologist
  • Oct. 11 - Pediatrician appointment
  • Oct 25 - speech therapy home visit
  • Nov 5 - 2nd hearing test with audiology
  • Nov 13 - Meeting with infant preschool educator
  • Nov. 19 - Ears, Nose, Throat Specialist appointment
  • Nov. 20 - speech therapy homevisit
  • Nov. 29 - speech therapy home visit
  • Nov. 30 - Surgery - tubes put in ears and tongue tie snipped
  • Dec. 3 - Pediatrician appointment
This brings us to today with all of Isaac's appointments. We still don't have a specific diagnosis if there even will be something to diagnose. What we have learned since my previous post which I had originally written in early November, is that he had fluid blocking his middle ear and that tubes would be recommended by the ENT. During his surgery they would also snip his tongue tie which may, or may not impact how well he speaks. This surgery was done On November 30. We have seen some improvements already but we are keeping a close eye on him and starting weekly speech therapy sessions at home this week. Hopefully his hearing was the issue with the delayed speech which may have impacted a lot of the other odd behaviors we were seeing.
 
Today I met with his pediatrician along with the infant preschool educator and it was a comforting appointment. Autism, has for the most part, been mostly ruled out based on his social interaction and awareness.  His scores on recent autism screenings were not perfect but didn't cause too much alarm. We are meeting again January 28 to discuss how speech therapy is going and to see how he is progressing. In the meantime we are looking forward to only having speech therapy for appointments this month and the bonus is that the speech therapist will come to our house. Huge sigh...
 
 

 
     
     
     
 
 

Why me? no...why not me?

Why me? no...why not me?

I've heard this in a sermon not to long ago, as well as from a wise lady who recently lost her husband to cancer. Who do we think we are that we would deserve to have the perfect life, perfect children, perfect husband and be perfect on top of that? I truly believe the Lord gives us trials to come closer to him and to depend on him for our strength.

This blog often paints a pretty picture of a perfect life. I keep a blog to enjoy the highlights of our life: milestones, holidays, everyday fun stuff, and Reno's. It may appear like I'm Martha Stewart's sister or a distant relative, like I'm super mom, that my kids are perfect little angels, or that my hair is always done, and that I have it so together, but I don't.

 I yell,
 I stress,
 I lose patience,
I get annoyed with our kids,
I could add to this list all day but it could get rather depressing.

I feel like I need to write it out, capture what I'm going thru right now so I can look back at it and see and remember a journey. A journey that I have a feeling is just beginning. A journey down a path that I would never have chosen for myself if I was in control, but I'm not in control, and I am thankful for that.

I remember a life not that long ago where I tried to be in control and to choose my path, and I really messed it up at every corner, bump and hill. It's only through God's grace that I am where I am today and I am forever thankful that he rescued me.

Okay to get on with the journey that may or may not be beginning...

This has to do with our big eyed, long eye lashed fun loving son Isaac. I would have to admit that I first started noticing that he was behind when I did the comparison game to our niece Shawna, who is 10 weeks older than Isaac, and our neighbor's daughter who is around 10 weeks older as well. Then when I compared Isaac to my good friend Tracy's son who is a good 10 weeks younger than Isaac, I really started thinking... wow Isaac is not very ambitious at all. I admit at times I wanted him to excel in something so I could have bragging rights, and to also reassure myself that he was just fine. As life continued on I convinced myself that it would come... the walking, the talking, the copying of words as I spoke to him.

The walking did come at 19 months and then the running eventually too.  We accepted, yes Isaac is unique and may be a bit slow but we were sure he would catch up on his own time. Maybe this is still the case. We aren't sure yet...

Next up came the talking or lack of. Again the toddlers/friends that we spent time with were pointing  and talking up a storm, and waving at people, and learning to play together. It'll come is what we convinced ourselves. Maybe he will just start talking in complete sentences someday. Andrew was kind of like that and he corrects our speech now.

Another thing we have picked up on over time is his high pain tolerance. If he gets hurt, he seems more mad that it happened than hurting from the pain and he quickly gets over it. He has burnt his fingers numerous times and bangs his head constantly. The head banging is a result of temper tantrums or a reaction to transitions. Example he's playing and we have to leave the house or he's in the tub and it's time to get out, or like on Saturday at the pool, he was going down the kiddy slide and we were heading to the hot tub. He throws himself to the floor (often concrete) and smacks his head. When this is about to happen there is no stopping him, if you get in his way you will get hurt as well. If you pick him up he will hit you over and over even if you give him a pinch to stop him or discipline him in some way. Some might say he just needs a good lick'in or that I/we are too soft but it's not that, trust me.

Yes, there is more. His napping. All of our boys liked to nap so it didn't send us a flag at first but now when his peers are cutting out their naps and he's sleeping 3-4 hours every afternoon it seems kind of strange. He has slept thru the night since he was 10 weeks old so it's not a matter of poor night sleeping. Why is he so exhausted?

His nursery behaviour is off too. I typically drop him off in the church nursery with his blanket and sippy cup and he is fine, but he has sat or stood in the exact same spot the whole hour while we are in church. This happened  only a few times but I have also seen him sprawl out on the floor amidst the chaos just laying there sucking his finger and holding his blanket. A few weeks ago I had to babysit in the nursery and I was reading books to a group of toddlers who were like sponges absorbing every word I read and repeating it back. It was so refreshing. I tried to include Isaac and he just walked away. It truly crushed me. He just doesn't seem to care.

Anyways these are a few odd things we've noticed, but his speech is very delayed and we noticed that back in the Spring already. So like with Sam and Luke I took him in for an assessment and it showed up that he was quite delayed but why? I wasn't even sure how they could assess him with hardly any words. Since his first assessment we have seen a pediatrician, a physiotherapist, an audiologist, a behavioural specialist, and his regular doctor.

In the next month we have more appointments. Weekly speech therapy appointments, another hearing test, an appointment with an Ears, Nose, Throat Specialist and another appointment with the pediatrician. Hopefully we will have a diagnosis at the end of the month.

We have heard everything from he's a lovely boy, he just may be delayed, to speech apraxia, to "I don't think it's autism", to he's just being lazy, to it's his tongue tie and that he may need tubes in his ears.

To say the least it has been a bit of a roller coaster ride the last few months and a real juggling act with all these appointments. I'm so thankful for Ken's family who always seem to drop everything to be there for me/us.

This is a pretty personal post but something I wanted to include in our blog capturing our everyday life. Stay tuned for updates on Isaac and please pray for him and for us as parents that we can be patient with him, and with all these doctors, and that we put our trust in the Lord.

Enjoying the little things November

Celebrated Ken's 36th b'day with friends and family!
My pretty BFF!
Hanging out with Emma.
This is how Luke gets the mail everyday for me.
Coaldale Parade of Lights
Hanging out with our old neighbors! Sure miss them!
Luke and mom built our family. It sure made Daddy chuckle when he came home from work.
Luke helping me make cinnamon buns.
Promotion supper at the school. The theme was Olympics. Mountain biker babes. Being dressed up for biking reminded me of us ten years ago.
Ang, Pete, Bryan and Denise.Jamaican bobsled team.
Love this guy so much!
and this one too.
Yummy icing beaters.
Babydoll!
Bathtime for Miss Rolls Emma.
Tower building time.
Guess who I found playing on the steps the other day. What a shocker...I wasn't ready for that yet.

Sunday, December 2, 2012

Daddy is our Hockey Hero!

 Ken played in the annual church hockey tournament a few weeks ago for the Coaldale Nurseries. The boys made a sign (see left sign) and our nieces made the "blinged up" sign for their Daddy (see right).
 uh, oh Daddy's in the penalty box again...See his fan club!
 Handsome but stinky!
 Simone, and Luke, hugging his brother Sam while they watch the game.
 Emma's first tournament.
I guess she didn't find it that impressive or exciting. Ken's team won second place and lost on a controversial call...
It is so neat to take the kids to watch their Daddy play, although they do get distracted playing with buddies and cousins in the bleachers.